Please let it be a
stroke. I was 26 and living alone (except for my cat) in Salt Lake
City, when I found myself praying these words. My neurologist was pretty
sure the spot on my MRI was a stroke, but he said it might also be a
brain tumor. He said I’d just have to wait three months (three
months!) get more pictures taken, and if the tiny spot had grown,
well, then, that meant it was a tumor.
I’d spent part of a recent night falling down and stumbling around
my apartment like a drunkard, thus the visit to a neurologist and the
MRIs. And so here I was, a young, non-smoker who’d always been
in decent physical shape, wishing for a stroke diagnosis.
Luckily I was spared the three-month wait. A stroke specialist (of
course I got a second opinion) confirmed that it was, indeed, a stroke
just a few weeks later. Now, however, the race was on to see what had
gone wrong before it could go wrong again. A gauntlet of tests, some
nasty and some not, stretched before me.
In between tests, I went to work as usual, and tried to carry on,
and I think I put up a fairly credible façade of being “a
trooper” during the day. At night, however, I lay awake by myself
and thought about the bad things that could happen, and the parts of
life I could miss. Maybe this was it, really it, the final it. Maybe
my number was up, and I’d never become President of the U.S.,
or marry, or have children, or find out what my face would look like
at age 40.
The stroke, it turned out, was of the “embolism” variety,
meaning the clot had originated somewhere else in my body and traveled
to the brain before becoming lodged in a blood vessel and killing off
a bunch of brain cells. Normally, the lungs filter these things out;
unless, of course, some kind of hole in the middle of your heart lets
a clot travel unmolested to your brain.
I’d already undergone one open-heart surgery to repair a hole
in my heart—when I was 2 years old—so I thought I’d
already been there, taken care of that. Growing up, I’d had no
physical restrictions. The only reminder of my crazy birth defect, a
heart with a gaping hole between the ventricles, was a long cross-hatched
scar that ran up the middle of my chest and looked like a pale pink
centipede.
But no, the doctors found a new hole, in a completely different spot
than the first—between the atria. Now the agonizing wait I’d
escaped earlier truly began. I had a surgery date set for early June,
but that was still almost two months away. All I could do was sit tight
and wait, and hope another clot wouldn’t sneak through in the
meantime, causing another stroke that might leave me permanently incapacitated
or dead.
As I waited, I realized I needed to do something to prevent myself
from contemplating all the “what-ifs” or I’d go nuts.
The key was to distract myself.
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