Now she stands, poised, ready to play
in her first recital, and Debby, in the front row, unrolls the music
poster. But Sophie does not want the music, she doesn’t want help.
“Don’t roll that out! Just roll it up like it was,”
she insists as the packed classroom of parents and children watch in
silence.
Debby hastily re-rolls the poster and Sophie focuses on her violin.
TWINK-LE, TWINK-LE, LITTLE STAR, sings the violin. Then Sophie pauses.
“Well done, Sophie!!” says the emcee and begins to clap,
at which the audience responds with polite applause.
“Not yet!” hollers Sophie over the din, exasperated.
The clapping wanes and Patricia half-stands from her third row seat
and loudly whispers to the emcee, “She wants to play the whole
thing,” but can only think to herself, ‘Sophie, please don’t
throw the violin!’
Sophie returns to playing, a bit distracted by the interruption, the
first notes slightly sharp:
HOW I WON-DER WHAT YOU ARE
The melody becomes more hesitant, staggered with pauses, some notes
slide prematurely into the next.
UP A ... ... BOVE THE-WORLD SO HIGH
But then the lines of music become confused.
TWINK-LE ... TWINK-LE ... ABOVE THE WORLD
LIKE A ...
Sophie pauses again, pulls her left hand away from the neck of the
violin, and touches her thumb to each of her four fingers, trying to
remember which line comes next.
“Just repeat the Pooh line,” whispers Debby.
Sophie responds in a high, tight, crying voice, emphatic with stress,
“It’s not Pooh line. I’m done with the Pooh Bear!
Which one of the other ones?”
Pooh is the first Twinkle verse, and the Violin is the second Twinkle
verse. The notes of each line are exact duplicates, but Patricia knows
Sophie hasn’t made that connection, she knows Sophie needs to
be told to play the Violin line. Patricia notices the man in the seat
in front of her. She can only imagine what he is thinking: ‘what
a spoiled brat.’ Sophie looks like a typical eight-year-old girl.
But little does he know that this whole experience, the noise, the people—let
alone the performance itself—is a stress load that can easily
overwhelm a child with autism, leading to either complete withdrawal
or into full-blown tantrum. And Sophie is struggling, but dealing with
the stress. She is coping.
Meanwhile, Debby unrolls Sophie’s music poster and Sophie, undaunted,
starts the second Twinkle verse marked by the violin sticker, playing
through it perfectly:
TWINK-LE, TWINK-LE, LITTLE STAR —
“Almost done!” Sophie calls sweetly to the crowd.
— HOW I WONDER WHAT YOU ARE.
The room fills with applause and Sophie just beams. She forgets to
bow, or even to leave the stage, and the audience responds by continuing
to clap. She is filled with awe at the moment.
“Wow,” Sophie says aloud, smiling as she takes it all
in. “Wow.”
Afterward Debby and Patricia hug tightly and cry, each thinking how
much this moment means to the other. Sophie comes up beside them. “Now
maybe you can jump on the trampoline,” she says.
“Now that you’ve had your first recital, maybe I can,”
muses Debbie.
Sophie continues, gently, “You don’t have to be scared.
I’ll be right beside you the whole time.”
Patricia Wigney hasn’t stopped her search for therapies and
programs that will help Sophie. In fact, she has brought her knowledge
to her community in Eugene, Oregon by creating Bridgeway House (which
opened in October 2003), a center for families affected by autism. Bridgeway
House offers counseling and support groups, education, advocacy, doctors
who specialize in naturalistic treatments of autism, and instruction
on various treatments and therapies. To learn more about Bridgeway House
and/or autism, visit bridgewayhouse.org.
TABITHA THOMPSON (LNF 2004) is a freelance writer living in Salt Lake
City. She is at work on a book about Bridgeway House.
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